Skip to main content

I'll just skip May, thank you

I've had what seems like a hundred blog posts rolling around in my head during the last month and somehow managed not to post a single thing in May. Nada...not a photo or sentence. Geez, that's pathetic. Will endeavor to do better.

I have connected with so many young adult cancer patients/survivors in the past month: a new friend who survived uterine cancer at 23, 36-year-old newly diagnosed thyroid cancer patient, another friend who survived testicular cancer at 28.

While three of us are talking about being a cancer survivor at a recent dinner, a friend of my husband whom he has recently reconnected with after 20 years shares his wife (late 30s) also survived stage 3 breast cancer.

Do we just talk about cancer more now or does it seem like there is more cancer being diagnosed now? Maybe better testing/scans? Also I wonder if I am just more aware of it since I was diagnosed almost two years ago.

I have had two people ask me recently if I'm in remission. I hate saying no...but I'm also not actively being treated. Feels like a trick question. There's not a short answer. It's complicated.

I don't mind talking about it, I'm just stumped by this question more and more. How about "my bloodwork is abnormal but there is nothing significant found on any scan." or "My doctor is monitoring me closely because...." or "Kinda..."

Often I feel pretty good. Other days, when I get a sharp pain in my neck or get a glimpse of the scar on my neck in the mirror, I'd rather just go crawl in my bed and take a nap. But then I remember there is a dance/school performance or soccer practice or groceries to buy, and I keep going. And that's good, just what I need to do.

Comments

  1. Sometimes all you can do is just breathe. Peace be the journey.
    - Jenny, diagnosed with thyroid cancer July 2009

    ReplyDelete
  2. Thanks for sharing your quote, Jenny. I will remember it!

    ReplyDelete

Post a Comment

Popular posts from this blog

Back to the Doctor...and 10 Things I Hate About Thyroid Cancer

OK, look at the last time I added a blog post....yes, January. Ridiculous. It's been too long since I've written, and I apologize for that. Time marches on, for the good or bad, and it has slipped away from me.

One item on my thyroid cancer timeline I see not documented in my blog: I did get more bloodwork done in April. It was good news: no change in the thyroglobulin. Just gotta keep on top of it and make sure that it doesn't get above 2.0.

I'm going to see Dr. W on Friday to check in, let him tell me it's time to get it and the TSH checked again. And...OK, here's the thing: I feel something/am having strange twinges on the left side of my neck. Everything has been on the right side to date so maybe......what is it? I will listen to my gut and let Dr. W tell me it's nothing rather than assuming that. Because even though I can say "oh, it's nothing," the thinking about it and worrying will drive me crazy.

Also, I discovered yesterday an amaz…

Letter to Dr. W

The latest and greatest (?) on the beast that is thyroid cancer, best expressed via the letter I sent to my new endocrinologist/thyroid cancer specialist:

Changing the Focus

I will turn 50 this month. In honor of this milestone -- and just because I want to -- I am changing the focus of my blog.

10 years ago at the age of 40, I was diagnosed with thyroid cancer -- papillary carcinoma. I started this blog after my first surgery as a means to communicate. I had lost my voice for about three weeks, and speaking was a challenge. Many well-meaning folks called in the days after my surgery to check on me. While it was fine that Chris and my mom provided updates, I missed being in contact with people. So I started writing.
Along the way, I learned that I liked to write and also found other cancer patients and survivors along the way. I needed an outlet, and, unexpectedly, my blog provided some perspective for those newly diagnosed as well as those of us who must endure the various follow-up visits and the anxiety that accompanies them.
My last cancer blog post was three years ago. Believe me, the anxiety is still there, but after two recurrences, I've had no…