Friday, November 7, 2008

The full story and West Virginia

So here's the full story on the endo visit. I blogged earlier this week it "went well" with him as it has not in the all. He increased my dose of Levoxyl from 125 to 137 immediately, even before checking my blood work. He initially said that my blood work looked fine, and I pointed out that's good but I still don't feel well. I had been at 125 since September and wanted an increase so that is good he actually listened.

What I'm still rolling around in my thyroglobulin levels reveal that I still have thyroid tissue, which is a little surprising. I knew I had some post-surgery as the surgeon said that to us, but I thought the radioactive iodine treatment would get rid of that. Apparently it didn't. The endo said he will give me an order for an ultrasound at my next appointment to see what's left.

So...what's left? Random thyroid tissue? A friend suggested that maybe a lymph node was missed. Ugh. Endo suggested I might get another treatment of the radioactive iodine, which frankly I have read is not that unusual. I just don't want to have surgery again. It isn't even on the table, but it makes me think about it...and about still having cancer still in my thyroid and/or lymph nodes or for that matter other places.

Please send good thoughts and prayers my way that (a) I will find some peace with this and not roll it around in my head constantly that there might be more cancer (b) that whatever is there is not cancer.

We are off to West Virginia this weekend for a church youth retreat. We went last year and had a great time. Morgan gets to go with us this time (we went last year, and she stayed home) as she is what Jennifer is calling a "mini-youth." She loves the label! She is less than a year away from being in the youth group but still...officially, she is not supposed to go. Anyway, we are all looking forward to it!

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