Skip to main content

The full story and West Virginia

So here's the full story on the endo visit. I blogged earlier this week it "went well" with him as it has not in the all. He increased my dose of Levoxyl from 125 to 137 immediately, even before checking my blood work. He initially said that my blood work looked fine, and I pointed out that's good but I still don't feel well. I had been at 125 since September and wanted an increase so that is good he actually listened.

What I'm still rolling around in my thyroglobulin levels reveal that I still have thyroid tissue, which is a little surprising. I knew I had some post-surgery as the surgeon said that to us, but I thought the radioactive iodine treatment would get rid of that. Apparently it didn't. The endo said he will give me an order for an ultrasound at my next appointment to see what's left.

So...what's left? Random thyroid tissue? A friend suggested that maybe a lymph node was missed. Ugh. Endo suggested I might get another treatment of the radioactive iodine, which frankly I have read is not that unusual. I just don't want to have surgery again. It isn't even on the table, but it makes me think about it...and about still having cancer still in my thyroid and/or lymph nodes or for that matter other places.

Please send good thoughts and prayers my way that (a) I will find some peace with this and not roll it around in my head constantly that there might be more cancer (b) that whatever is there is not cancer.

We are off to West Virginia this weekend for a church youth retreat. We went last year and had a great time. Morgan gets to go with us this time (we went last year, and she stayed home) as she is what Jennifer is calling a "mini-youth." She loves the label! She is less than a year away from being in the youth group but still...officially, she is not supposed to go. Anyway, we are all looking forward to it!


Popular posts from this blog

Back to the Doctor...and 10 Things I Hate About Thyroid Cancer

OK, look at the last time I added a blog post....yes, January. Ridiculous. It's been too long since I've written, and I apologize for that. Time marches on, for the good or bad, and it has slipped away from me.

One item on my thyroid cancer timeline I see not documented in my blog: I did get more bloodwork done in April. It was good news: no change in the thyroglobulin. Just gotta keep on top of it and make sure that it doesn't get above 2.0.

I'm going to see Dr. W on Friday to check in, let him tell me it's time to get it and the TSH checked again. And...OK, here's the thing: I feel something/am having strange twinges on the left side of my neck. Everything has been on the right side to date so maybe......what is it? I will listen to my gut and let Dr. W tell me it's nothing rather than assuming that. Because even though I can say "oh, it's nothing," the thinking about it and worrying will drive me crazy.

Also, I discovered yesterday an amaz…

Letter to Dr. W

The latest and greatest (?) on the beast that is thyroid cancer, best expressed via the letter I sent to my new endocrinologist/thyroid cancer specialist:

Changing the Focus

I will turn 50 this month. In honor of this milestone -- and just because I want to -- I am changing the focus of my blog.

10 years ago at the age of 40, I was diagnosed with thyroid cancer -- papillary carcinoma. I started this blog after my first surgery as a means to communicate. I had lost my voice for about three weeks, and speaking was a challenge. Many well-meaning folks called in the days after my surgery to check on me. While it was fine that Chris and my mom provided updates, I missed being in contact with people. So I started writing.
Along the way, I learned that I liked to write and also found other cancer patients and survivors along the way. I needed an outlet, and, unexpectedly, my blog provided some perspective for those newly diagnosed as well as those of us who must endure the various follow-up visits and the anxiety that accompanies them.
My last cancer blog post was three years ago. Believe me, the anxiety is still there, but after two recurrences, I've had no…